My grandfather, aged 86 (and, I might add, one of my favorite people in the world), has advanced Parkinson’s Disease.
Over the past 6 years, I’ve watched him disintegrate rapidly. Always super intelligent (and quite the history buff), a little eccentric, and very healthy, it’s been painful for me to watch this. Because the Parkinson’s has taken over his body, and what’s left of him is that man trapped inside a shell that won’t let him connect with the outside world anymore. I can see his mind still working, but it’s literally painful for him to get any words out. He can’t write anymore. He won’t walk anymore. My grandmother (bless her) has tried giving him pads, magnetic letters, you name it, but he’s stubborn, and won’t use them. So, it can take several minutes for him to get one sentence out, even though that clear look in his eyes tells me that there’s a lot still going on in there.
It’s too painful for tears.
All my life, he’s been a vibrant, fun, interesting Irishman who loved to be the life of the party. When I was growing up, he was the only man permanently in our household, with five females (my grandmother, my maternal great grandmother, my mother, my sister, and me). Hoo hah! And with all the seriousness in the house — there wasn’t a lot of humor, I recall — he was always a breath of fresh air. I loved going upstairs to see Grandpa, especially when I had a question about history, because though it was by far my least favorite subject in school, he made it come alive for me. And at the family get togethers, when he and my Uncle Tommy (who’s already passed) would talk about WWII and argue about which was better, the US Navy or the US Army (Uncle Tommy – Navy, Grandpa – Army), I would just sit and listen, because they were so fun to listen to!
I was never close with my grandmother when I was young — she really didn’t talk very much, and when she did, it was mostly to my sister – and my mother wasn’t around very often (a side effect of being a single parent in the ‘70-’80s). My sister is 6.5 years older than me, so she wasn’t much to talk to until we were both adults, and my great grandmother died in 1980, when I was 11. So Grandpa was all that was left. Though he always seemed a little dreamy, a little distant, he was always fun and pleasant to talk to when I was a kid. He seemed genuinely interested in me and what I did.
And though, in adult life, my relationships with everyone else have changed, matured, and vastly improved, I’ve still loved talking to Grandpa. He’s always been so interesting! And almost never sick, until he had to get heart bypass surgery in the late ’90s. Then it seemed to slip downhill from there. He fell on the ice in wintertime and got a hematoma in his head; the doctors think he might have had a ministroke that went undetected, and soon around then is when he was diagnosed with Parkinson’s.
I will admit he’s quite the stubborn coot! He refused physical therapy in the beginning, which I think started a downward spiral — because he wasn’t using his limbs, but favoring them, so his disability got worse, and so on, and so forth. No matter. Because in the past six years, I’ve watched him go from driving to not, to using a cane, to using a walker, to using a wheelchair, and now, to basically never leaving the recliner chair in his livingroom. And that wouldn’t be SO bad, if he could — would — communicate! My grandmother, at 82, is his main caregiver, and is constantly pulling something in her back, her foot, or other parts because she’s lifting him when he falls, and that’s pretty often. She hasn’t qualified for Medicare-sponsored help to come in, and she refuses to put him in a home (because Lord knows, the Home would take everything they have to put him in there). My mother lives nearby to help when she can, but still. To my understanding, most of the time, he doesn’t even leave the chair to go to the bathroom anymore — he uses a Texas catheter most of the time, and maybe gets out of the chair once a day.
I was just there this past weekend, and every time I see him, it’s more and more painful. He’s so frustrated because I know those lucid thoughts are still there, yet in his eyes, I see a little boy, scared because somewhere in there he knows he’s not long for this world, and is terrified. At this point, I wonder why. I know he so loves my grandmother — one of the only thing that makes him smile anymore is when he looks at old pictures of them or tries to talk about old stories from when they were younger — and they’ve essentially been together and in each other’s lives for something like 65+ years (save a relatively short period in there when my grandmother divorced him, married someone else, then divorced the other guy and married him again). But no matter how attached he is to her (and she to him, don’t get me wrong), how good is it when he’s just a shell of the man he was, needing 24/7 care, and she’s miserable and terrified at the same time – trapped, as well? SHE barely ever leaves the house, and when she does, she’s in a rush to get back, because she’s afraid of something happening when she’s out. She’s hired someone to tend to him for a few hours once a week, so my mother can take her and my great aunt out food shopping. But, from outside eyes, they’re both miserable. And it’s the most painful kind of misery. Because they’re both afraid of losing each other, yet they’ve already lost each other and refuse to see it. And he’s cranky and sometimes downright mean and inconsiderate to her, and she’s sometime mean and resentful right back to him.
So today, in my solitude while I was working in the greenhouses, I prayed – to God, to the universe, to our spirit guides and to all that help us — to please, please, PLEASE take him very soon. Because I love him — I love both of them — and it’s like they’re both in hell, when they love each other so much. And we all love them. But I don’t want him — them — to be in pain anymore. I want him to be able to let go, and realize that moving on is a beautiful thing — that he will be released of all of his woes, and that he will be whole in spirit again. And even if my grandmother lived for another 20 years, it’s nothing — a speck on a speck of time — before they will be able to be together again.
He needs to know it’s OK to let go. And go.
So I hope *they’re* going to help him over, and soon. Because I think he’s in hell now. And so is she. And no one deserves that.
Is that wrong, for me to feel that way? I don’t think so; I told my father, when he was barely lucid and just completely wasted away from the cancer, that we loved him, but it was OK for him to go. My sister did the same; he died within a week after those conversations. I wouldn’t be able to say that now, because I think my grandmother would kill me if I did.
But I can pray for it.
I love you, Grandpa, and know that you will always be with me, even when you are tired of the constraints of your body’s prison cell that it has become. And I hope you free yourself of it soon.
